Hi to anyone who may be reading this, I realise it’s been a really long time since i posted anything. Sorry about that!
I’m writing this blog as I sit on the bathroom floor, whilst my amazing fiancee (Lushane/Lush) sits in the bath, watching a video on her iPad. You’re probably thinking that’s a little bit weird and why wouldn’t i just leave her to have a bath in peace?
Well there is actually a good reason for this. You see she’s probably going to be in the bath for a while because she’s currently suffering from a Fibromyalgia (FMS) flare up, and sometimes a long bath is the only thing that makes her feel just a little bit better, even with the cocktail of medications she takes. So I thought rather than sit downstairs by myself for a few hours why not get back to my blogging, and use it as an opportunity to spread the word about Fibromyalgia, through my experience of living with someone who has this condition.
You see she may not know this, even though I tell her quite a lot but Lushane is my world, my rock and my inspiration everyday. She inspires me with her determination to get up everyday, and live with this sometimes debilitating chronic pain condition, and her strength gives me strength.
What is Fibromyalgia?
If you don’t know what Fibromyalgia is there are some links below:
http://www.nhs.uk/Conditions/Fibromyalgia/Pages/Introduction.aspx – NHS Fybromyalgia
http://ukfibromyalgia.com/index.php – UK Fibromyalgia
What it all means…
Well for us what it means there are some days where Lush doesn’t even have the strength to get out of bed in the mornings, either because she is so much pain that is physically impossible, or one of the many tablets she takes makes waking up a challenge.
You see the symptoms of Fibromyalgia can be one or a multiple of many different things whilst living in constant pain is the most prominent, there is the insomnia which means Lush is sometimes awake until the early hours of the morning, before being able to drop to sleep, unless she take one of her many prescribed medications. There are also the flu like symptoms to deal with where she is in pain, but also has migraine like headaches, that make her so weak she’s almost unable to walk.
Then there is the fog, this is where FMS affects her memory and her thought pattern which make focusing and concentrating difficult, so unless something is written down there is no way she’s going to remember it.
I just want to go back to the pain though, sometimes there is no rhyme or reason as to why Lush in pain, and sometimes it can be in her hip, sometimes it can be in her arms and other times is can be full body pain. However, this isn’t just pain like a you might imagine, this is excruciating crippling pain, that can only be eased by the various medications that she has to take throughout the day at different intervals.
So yes i’m sat on the floor, but there is no where else I would rather be, because if Lushane can get up everyday and deal with an illness most of us would not have the strength to endure for even one day, then sitting on the floor is the least of my worries.
So Lushane this post is for you. I love you!